Spivey, 53, relocated to Moscow in 2010 with her husband, who works for the Caspian Pipeline Consortium of British Gas. Now she heads Spread Sunshine, a charity project run by the American Women’s Organization (AWO) together with Nastenka.
Spivey and several other women bring food to the pediatric oncology unit of a local hospital. “We take snacks like juice and candies, or crackers for the babies and small toys,” she said. With the help of Nastenka’s Russian-speaking staff, they visit with patients and their families. “There’s a language difference, but it doesn’t seem to matter,” Spivey said. “You can just connect heart to heart, emotion to emotion, and just be there for somebody.” Other AWO members support Nastenka by donating diapers and toys. The group organizes a Christmas Arts and Crafts Festival, which this year raised around $35,000.
Last year, the women met Yuna, a 10-year-old girl being treated on the ward. “She used to follow the cart down the hall with us and draw pictures for the staff. She was just this bright spirit,” she said. After Yuna passed away last summer, the group has become more dedicated than ever to helping the hospital.
“No matter where you live in this world, people all want the same things,” Spivey said. “These experiences just remind you of that and teach you to get down past the cultural differences, past the language differences, to the things that connect us as humans.”
Born in Chicago, Roza has lived in Russia since 1989. She founded Perspektiva, a disability nonprofit, in 1994. Interested in doing more outreach to the intellectually disabled, she started Best Buddies in 2009 after meeting founder Anthony Kennedy Shriver at a conference.
In the organization’s office, she juggles phone calls in effortless Russian. “I’ve been here too long,” she laughs when she can’t remember a word in English.
She said one of the most successful friendships to date is between Vika and Vera. “When Vika was getting her driver’s license, Vera was even sitting in the backseat.” Volunteers and families come together at group events such as the Christmas cookie-decorating party, held this year at Spaso House, the American ambassador’s residence.
According to Roza, the concept of charity is only beginning to develop in Russia. “Volunteering really isn’t part of the culture,” she said. “It’s changing, but it’s still very new.” To combat dropout, Roza has spearheaded extra sessions and leadership trainings. She is also in the process of developing a new employment program. “Most people with intellectual disabilities will go to a school, but after that there’s nothing. That’s it. So they end up sitting at home,” she said.
Roza turns quiet when asked about herself, but she’s happy to talk about her work: “What Best Buddies has given me is an opportunity to get to know people with developmental and intellectual disabilities,” she said. “It’s important to really be a part of their lives.”